medically complex child
The Unexpected Purpose I Found as a Medically Complex Mom
Before you become a medically complex parent, this world isn’t really part of your world. You have school problems, relationship problems, work problems, normal parenting problems. You may hear the words “medically complex,” but you don’t really know what they mean. Then suddenly, you’re in this world. And eventually, the strange things become normal. DME […]
Coming Home to the Medically Complex Bubble
I recently came home from a trip with a feeling I haven’t fully sorted out yet. While I was gone, I saw two little kids who made me realize how much my perspective has changed. One little boy looked about five to me. He was standing up straight, walking, talking, and he was tall enough […]
My Child Is in Hospice: A Parent’s Perspective on Pediatric Hospice Care
Five years ago, if you had mentioned hospice, I would have thought of an elderly person who no longer wanted to “fight” a disease or simply someone reaching the end of life because of old age. I imagined a long process where they were cared for in comfort until they passed away. Three years ago, […]