The Unexpected Purpose I Found as a Medically Complex Mom
Before you become a medically complex parent, this world isn’t really part of your world. You have school problems, relationship problems, work problems, normal parenting problems. You may hear the words “medically complex,” but you don’t really know what they mean. Then suddenly, you’re in this world. And eventually, the strange things become normal. DME […]
How to Pack my Medical Emergency To Go Bag for my Medically Complex Child
When you bring home a medically complex child, the hospital does everything they can to prepare you. They teach you how to suction a trach. They teach you how to change it. They teach you about G-tubes, medications, equipment, and what to do in an emergency. You leave with binders full of information and your […]
Coming Home to the Medically Complex Bubble
I recently came home from a trip with a feeling I haven’t fully sorted out yet. While I was gone, I saw two little kids who made me realize how much my perspective has changed. One little boy looked about five to me. He was standing up straight, walking, talking, and he was tall enough […]
When People Stare at Your Child with a Disability: A Mother’s Perspective
When I first got my daughter’s diagnosis, I wasn’t thinking about how the world would see her. I was only trying to process my own reaction—my own emotions. There wasn’t space to think about what I would need to prepare for. The first time I took Paige out with her ventilator, the cashier looked at […]
The Burden of Care: Love Inside Heavy Things
The Weight Unseen There are many phrases we use half-heartedly. Phrases we don’t fully understand, yet use to describe feelings or situations we ourselves have never truly experienced. It’s not until we witness someone living out that phrase that we begin to understand what it really means. To me, that phrase is the burden of […]