medical
The Unexpected Purpose I Found as a Medically Complex Mom
Before you become a medically complex parent, this world isn’t really part of your world. You have school problems, relationship problems, work problems, normal parenting problems. You may hear the words “medically complex,” but you don’t really know what they mean. Then suddenly, you’re in this world. And eventually, the strange things become normal. DME […]
Being an Advocate in the Medical World: When Things Get Sensitive and Intense
Before becoming Paige’s mom, I never thought I’d have a discussion on whether or not to give a bolus of ketamine or morphine when Paige’s head turned ever so slightly. I never thought I’d be begging a doctor to let me breastfeed, or crying in the bathroom when a new order was made that prevented […]
Post Traumatic Stress Disorder, but expressed in a poem
Terror, Fear Adrenaline, Panic What word can describe The incomparable grit The flash of fear, The heart beat rush One minute happy, The next is a demon I can’t breathe, I can’t even gasp All at once, I feel it The feeling I never wanted to return I try and sleep, But the faces come […]
Being an Advocate in the Medical World: Learning How to Listen, Ask Questions, THEN Make Decisions
What is the parents’ role in the medical field? What is the parents’ role when they are in the ICU, their child is on death’s door, and the medical profession has now “taken charge” in a sense? Have you now lost control over your child? Do you even have a role? Advocating takes Dedication, Patience, […]
Advocating for your Child in the Medical World: Part 1
This post is the beginning of a series that God willing I will be writing in the next couple of weeks. To be honest with you, I am completely unqualified to write this as I struggle with these things too – but in practicing respect and advocacy, I feel that maybe because I know and […]