tracheostomy
My Child Is in Hospice: A Parent’s Perspective on Pediatric Hospice Care
Five years ago, if you had mentioned hospice, I would have thought of an elderly person who no longer wanted to “fight” a disease or simply someone reaching the end of life because of old age. I imagined a long process where they were cared for in comfort until they passed away. Three years ago, […]
Trach care at home for babies: A practical, calm guide for caregivers
Going home with a child who has a tracheostomy is both a relief and a new routine. This post is written from a mom’s perspective to help make trach care at home for babies feel manageable, practical, and less intimidating. You’ll find simple steps, supply lists, and the little tips that turn an overwhelming hospital […]
If Your Child Needs a Trach: Part 2
Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t imagine stepping aside for a minute – I couldn’t imagine the time and energy it would take to constantly take care of secretions, bacteria, etc. […]