Blogs & Poems
Safe and Simple Syringe Maintenance for Home Healthcare Parents
When you bring a medically complex child home, one of the smallest pieces of equipment—syringes—suddenly becomes essential. This post covers home health syringe maintenance so you can feel confident drawing meds, feeding, cleaning, and storing syringes safely. I’m three years into this life and I want to walk you through what I learned the hard […]
From Hospital to Home: How to Confidently Care for Your Child’s Medication Needs at Home
Moving your child from hospital care to home means learning a lot of new responsibilities. From hospital to home I had to become comfortable with syringes, medicine math, and the frightening responsibility of giving medications that can be dangerous if given incorrectly. If you are in that place, you are not alone. Allow yourself to […]
Caring for Your Child After Discharge: Finding Your New Normal
When the Hospital Stay Changes Everything A long stay in the hospital can be a frightening thing — especially when it’s sudden, unexpected, and life changing. Maybe you were in a car accident, and your once “typical” child is now medically complex. Maybe you gave birth prematurely, and your baby has been in the NICU […]
When Faith Meets Mental Illness: How God Helped Me Take One More Step
In April 2024, I wrote a poem. In video titles I say “written in the middle of a mental breakdown” because that’s the best way I know how to describe it. I don’t really know what to call it. But I can describe it for you — and then you’ll understand why I wrote this […]
Dystonia Awareness Month: My Toddlers Life with Dystonia
The First Time I Saw Dystonia The first time I saw dystonia was when my daughter was less than an hour old. At the time, I didn’t know what it was. Her tiny legs were shaking uncontrollably and stiff. The nurses thought it was a seizure, but it wasn’t. It stopped—and nobody mentioned it again. […]