Blogs & Poems
Dystonia Awareness Month: My Toddlers Life with Dystonia
The First Time I Saw Dystonia The first time I saw dystonia was when my daughter was less than an hour old. At the time, I didn’t know what it was. Her tiny legs were shaking uncontrollably and stiff. The nurses thought it was a seizure, but it wasn’t. It stopped—and nobody mentioned it again. […]
Living One Day at a Time: Special Needs Parenting without Plans
I have always been a planner—from when I was very small, an 11-year-old, to now as a mama of a toddler with a rare genetic condition. A planner who likes crossing every t and dotting every i. I like having a to-do list, a goal list, and even a next-year list. I always thought this […]
From Thought to Verse: The Story behind Dr. Mom
The Opposite of What I Wanted When I was a child, my dream was to be a cashier. I kid you not. My parents once bought me a receipt maker for my birthday, and I sold my toys to my friends for real money just so I could print receipts. I was going to be […]
From Thought to Verse: A Hole in My Heart
When I tell people I write poetry, the first thing they often ask is,“How do you have time for that?”The truth is—I don’t make time for it. It’s not on a checklist, and it’s not a goal I chase. It just happens… because writing is how I cope. When I get the chance, I show […]
Being an Advocate in the Medical World: When Things Get Sensitive and Intense
Before becoming Paige’s mom, I never thought I’d have a discussion on whether or not to give a bolus of ketamine or morphine when Paige’s head turned ever so slightly. I never thought I’d be begging a doctor to let me breastfeed, or crying in the bathroom when a new order was made that prevented […]