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My Child Is in Hospice: A Parent’s Perspective on Pediatric Hospice Care
Five years ago, if you had mentioned hospice, I would have thought of an elderly person who no longer wanted to “fight” a disease or simply someone reaching the end of life because of old age. I imagined a long process where they were cared for in comfort until they passed away. Three years ago, […]
When Faith Meets Mental Illness: How God Helped Me Take One More Step
In April 2024, I wrote a poem. In video titles I say “written in the middle of a mental breakdown” because that’s the best way I know how to describe it. I don’t really know what to call it. But I can describe it for you — and then you’ll understand why I wrote this […]
Dystonia Awareness Month: My Toddlers Life with Dystonia
The First Time I Saw Dystonia The first time I saw dystonia was when my daughter was less than an hour old. At the time, I didn’t know what it was. Her tiny legs were shaking uncontrollably and stiff. The nurses thought it was a seizure, but it wasn’t. It stopped—and nobody mentioned it again. […]
“There’s Nothing Quite like Home…”
There’s nothing quite like home,The quiet peace that surrounds you.The quiet – you can hear yourself breatheThe smells – the ones that make you feel you belongThe soaps and things,They’re all your favoriteThe fridge too, it’s stocked with all your own..There’s nothing quite like home,Because it’s the place you can face life’s deepest challengesIt’s the […]
How Time Has Helped Me to Accept
Time Heals? People often say, “Time heals” or “Wait a little while, it’ll feel better” In the context of a disabled child, though, this is a really hard thing to hear because more often than not, time doesn’t heal – it just brings different sets of challenges. At first you’re dealing with the impact of […]