Blogs & Poems
Home Together with a G-Tube Baby: Learning the Infinity Pump
Bringing a medically complex child home can feel like a second hospital discharge with a newborn all over again. You’re learning things that you never thought you’d have to learn, you’re sometimes confused, and very often overwhelmed. In this blog I will try and alk you through the basics of gtube care at home using […]
“I Could Never Do What You Do”
When Comparison Takes a Different Form My last blog post hinted at the idea of comparing other children to our own — a “normal” life versus a special needs one. In this post, I want to look at the other extreme people often drift toward. In many conversations, I share my experience with my daughter […]
From Hospital to Home: Practical Tips for G-tube Baby Care at Home
Bringing a medically complex child home is a mix of relief and fear — and when your discharge plan includes a feeding device, that tension spikes. This guide on G-tube baby care at home is written for the parent who is tired, overwhelmed, and ready for clear, step-by-step help. I’ll share what a G‑tube really […]
How to Break the Comparison Cycle as a Medical Parent
Introduction: We All Compare Grief Comparing grief is something we all do, whether we mean to or not. We see someone across the hall and think, “Wow, I could never do what they do,” or “They’ll never understand.” But comparison creates barriers—between friends, family, and even strangers who could become something meaningful in our lives. […]
Trach care at home for babies: A practical, calm guide for caregivers
Going home with a child who has a tracheostomy is both a relief and a new routine. This post is written from a mom’s perspective to help make trach care at home for babies feel manageable, practical, and less intimidating. You’ll find simple steps, supply lists, and the little tips that turn an overwhelming hospital […]