Blogs & Poems
As my dad always says “I have words…”
From my spiritual reflections to the day to day tasks – words come flooding out!
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If My Baby Needs a Trach: Part 1
Read more: If My Baby Needs a Trach: Part 1The first time I heard the word โtrachโ, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my daughter with a ventilator hooked to her 24/7, a tube down her throat permanently, and not even being able to hear her voice was so…
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A G-Tube Formula Recipe that Warms Your Heart: Pumpkin Pie
Read more: A G-Tube Formula Recipe that Warms Your Heart: Pumpkin PieThere is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you wonโt even mind it, itโll be systematic, and other days it hits you like a brick and itโs all you can think about. Those are the days I need recipes like this – Paigeyโs Pumpkin…
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Tips for “Living” in a Hospital – For Caregivers
Read more: Tips for “Living” in a Hospital – For CaregiversThe big events, the unexpected and shocking events, are the ones where we need help the most. Yet typically, youโre in a hospital – you couldnโt pack, process, or prepare – and yet here you are, in the Intensive Care Unit – and youโll be here for who knows how long. Iโve been there –…

