Blogs & Poems
As my dad always says “I have words…”
From my spiritual reflections to the day to day tasks – words come flooding out!
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“NonWordy” (nonverbal) People: How Can we Fit in their Box?
Read more: “NonWordy” (nonverbal) People: How Can we Fit in their Box?Before Paige, the term nonverbal to me sounded almost like an excuse (prepare yourself to see how immature, judgmental, and ignorant I was before I entered the world of special needs) It sounded like an excuse for an ill behaved child – parents who didn’t do enough, and allowed their child to sit and scream.…
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Faith versus The Terrifying Unknown of Alternating Hemiplegia of Childhood
Read more: Faith versus The Terrifying Unknown of Alternating Hemiplegia of ChildhoodWill Paige stop breathing today Will she hit her record since her last severe event? Will she live to be in her 30’s? Will she develop uncontrollable seizures? Will she have a heart attack next time? Will I get to hold my baby girl until I am old and grey? The terrifying unknown. The unknown…
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If Your Child Needs a Trach: Part 2
Read more: If Your Child Needs a Trach: Part 2Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t imagine stepping aside for a minute – I couldn’t imagine the time and energy it would take to constantly take care of secretions, bacteria, etc.…