When you bring home a medically complex child, the hospital does everything they can to prepare you. They teach you how to suction a trach. They teach you how to…
I recently came home from a trip with a feeling I haven’t fully sorted out yet. While I was gone, I saw two little kids who made me realize how…
When I first got my daughter’s diagnosis, I wasn’t thinking about how the world would see her. I was only trying to process my own reaction—my own emotions. There wasn’t…
The Weight Unseen There are many phrases we use half-heartedly. Phrases we don’t fully understand, yet use to describe feelings or situations we ourselves have never truly experienced. It’s not…
How learning to see differently changed everything. Ever since I was a child, I’ve had vivid dreams. Sometimes they are nightmares, sometimes they feel like blessings—often depending on what’s happening…

Busy

I have a free hour  An hour to do as I please  I usually run, I hustle about  Always looking at the time, Always setting reminders my planner is endless To dos, meetings, appointments – Don’t forget to call her, Check on him, remember  Feed yourself, feed your family Remember to not eat too much […]

1 min read

“Dr. Mom”

How to explain, The instinct that washes over me. The doctors, they come. The nurses – they sometimes care. But I’m the one, Who’s Dr Mom. I know more, I see more. I see when she holds her breath – I see when her eyes become tired. The seizures? They’re sub-clinical. But sometimes, I see […]

1 min read