Home Together: Caring for Your Medically Complex Child
My Child Is in Hospice: A Parent’s Perspective on Pediatric Hospice Care
Five years ago, if you had mentioned hospice, I would have thought of an elderly person who no longer wanted to “fight” a disease or simply someone reaching the end of life because of old age. I imagined a long process where they were cared for in comfort until they passed away. Three years ago, […]
One in a Million: Life Inside Paige’s Bucket
As a child, I did so many wonderful things — road trips, visiting friends in their homes, sleepovers, big vacations. These were the experiences I always imagined I would share with my own children. My husband, who is from another country, dreamed of going back one day and spending long stretches of time there. Before […]
Home Together with a G-Tube Baby: Learning the Infinity Pump
Bringing a medically complex child home can feel like a second hospital discharge with a newborn all over again. You’re learning things that you never thought you’d have to learn, you’re sometimes confused, and very often overwhelmed. In this blog I will try and alk you through the basics of gtube care at home using […]
From Hospital to Home: Practical Tips for G-tube Baby Care at Home
Bringing a medically complex child home is a mix of relief and fear — and when your discharge plan includes a feeding device, that tension spikes. This guide on G-tube baby care at home is written for the parent who is tired, overwhelmed, and ready for clear, step-by-step help. I’ll share what a G‑tube really […]
Trach care at home for babies: A practical, calm guide for caregivers
Going home with a child who has a tracheostomy is both a relief and a new routine. This post is written from a mom’s perspective to help make trach care at home for babies feel manageable, practical, and less intimidating. You’ll find simple steps, supply lists, and the little tips that turn an overwhelming hospital […]