Blogs & Poems
As my dad always says “I have words…”
From my spiritual reflections to the day to day tasks – words come flooding out!
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One in a Million: Discovering Paige’s Diagnosis
Read more: One in a Million: Discovering Paige’s DiagnosisJanuary 25th, 2023 January 25th, 2023 — three years ago, something happened to my 9-week-old baby girl.I almost lost her in my arms. Paigey—my sweet little girl, who somehow already had sass even as a newborn—was rushed into a Level 1 trauma room at Texas Children’s ER. I didn’t even know this hospital existed. I…
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Unfelt Feelings: What It’s Like Raising a Medically Complex Child
Read more: Unfelt Feelings: What It’s Like Raising a Medically Complex ChildThis past week there was a morning I couldn’t keep myself from crying. I was emptying the dishwasher. Every time I looked up at my girl, I felt it—sorrow, worry, fear—all at once. The tears fought, like they always do. I tried to keep moving. I tried to stay busy. But eventually I sat down…
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Home Together with a G-Tube Baby: Learning the Infinity Pump
Read more: Home Together with a G-Tube Baby: Learning the Infinity PumpBringing a medically complex child home can feel like a second hospital discharge with a newborn all over again. You’re learning things that you never thought you’d have to learn, you’re sometimes confused, and very often overwhelmed. In this blog I will try and alk you through the basics of gtube care at home using…