Blogs & Poems
As my dad always says “I have words…”
From my spiritual reflections to the day to day tasks – words come flooding out!
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Food is Medicine: A Superfood Rich Recipe for your G-Tube Fed Child
Read more: Food is Medicine: A Superfood Rich Recipe for your G-Tube Fed ChildDon’t forget about Superfoods Sometimes when you become a special needs parent, food in a sense goes “out the window”. Many times in our lives, we forget the nutritional benefit of a wide variety of foods. We forget that food is indeed part of our medicine. For g-tube babies, I’ve found this can be even…
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Creating the Special Needs Standard in Our Mind
Read more: Creating the Special Needs Standard in Our MindCurrently, I am one of those moms now that weirdly asks things like “Oh, when are they supposed to eat again?” or “Oh wow he walks and he’s only 18 months?” The standards in my mind are so fuzzy – before I became a mom I had some general idea, but now that I’m a…
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Alternating Hemiplegia of Childhood – A Genetic Disorder – What is it and how can you understand it better?
Read more: Alternating Hemiplegia of Childhood – A Genetic Disorder – What is it and how can you understand it better?February 18th, 2023, John and I decided to give our girl a chance. She had received a difficult diagnosis a week earlier – a diagnosis we were at the very first step of learning. She had symptoms other children didn’t have, and the symptoms other children had were ones that would change my girl’s life…