Blogs & Poems
As my dad always says “I have words…”
From my spiritual reflections to the day to day tasks – words come flooding out!
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The Unexpected Purpose I Found as a Medically Complex Mom
Read more: The Unexpected Purpose I Found as a Medically Complex MomBefore you become a medically complex parent, this world isn’t really part of your world. You have school problems, relationship problems, work problems, normal parenting problems. You may hear the words “medically complex,” but you don’t really know what they mean. Then suddenly, you’re in this world. And eventually, the strange things become normal. DME…
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How to Pack my Medical Emergency To Go Bag for my Medically Complex Child
Read more: How to Pack my Medical Emergency To Go Bag for my Medically Complex ChildWhen you bring home a medically complex child, the hospital does everything they can to prepare you. They teach you how to suction a trach. They teach you how to change it. They teach you about G-tubes, medications, equipment, and what to do in an emergency. You leave with binders full of information and your…
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Coming Home to the Medically Complex Bubble
Read more: Coming Home to the Medically Complex BubbleI recently came home from a trip with a feeling I haven’t fully sorted out yet. While I was gone, I saw two little kids who made me realize how much my perspective has changed. One little boy looked about five to me. He was standing up straight, walking, talking, and he was tall enough…