If My Baby Needs a Trach: Part 1
The first time I heard the word “trach”, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my daughter with a ventilator hooked to her 24/7, a tube down her throat permanently, and not even being able to hear her voice was so […]
A G-Tube Formula Recipe that Warms Your Heart: Pumpkin Pie
There is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you won’t even mind it, it’ll be systematic, and other days it hits you like a brick and it’s all you can think about. Those are the days I need recipes like this – Paigey’s Pumpkin […]
Tips for “Living” in a Hospital – For Caregivers
The big events, the unexpected and shocking events, are the ones where we need help the most. Yet typically, you’re in a hospital – you couldn’t pack, process, or prepare – and yet here you are, in the Intensive Care Unit – and you’ll be here for who knows how long. I’ve been there – […]
Special Needs and a Special House
A Messy House When you step into my house, you’ll notice a lot of unusual things. Exercise equipment is scattered all over the floor, the dining room table is piled high with unopened mail, there’s a stack of boxes by the door, and grocery bags are left unpacked in the kitchen. The living room is […]
Leaning In – Stress, but in a Marriage’s Perspective
In a few moments I will be leading a discussion on loving our husbands – and I cannot help but realize that the time I learned what true sacrificial love was, was when I wrote this poem. I pray that my readers can be encouraged to love their husbands, even if it feels like the […]