Being an Advocate in the Medical World: Learning How to Listen, Ask Questions, THEN Make Decisions
What is the parents’ role in the medical field? What is the parents’ role when they are in the ICU, their child is on death’s door, and the medical profession has now “taken charge” in a sense? Have you now lost control over your child? Do you even have a role? Advocating takes Dedication, Patience, […]
Advocating for your Child in the Medical World: Part 1
This post is the beginning of a series that God willing I will be writing in the next couple of weeks. To be honest with you, I am completely unqualified to write this as I struggle with these things too – but in practicing respect and advocacy, I feel that maybe because I know and […]
Nursing for My Child: A Beautiful Gift in a Special Needs World
Bearing the Load Together When Paige was first diagnosed – a little 3 month old baby – the terms “24 hour nursing care” were thrown at me, and I felt as though they were weapons. I was scared of not knowing how to take care of trach dependent child, yes, but the thought of having […]
The Beauty of Community: Why I Love Volunteering for a Cause
Last week, I traveled – I rarely travel, as Paige is disabled and leaving her can leave quite a hole in her routine. It takes work, it takes planning. But, if I’m traveling for the right cause, it’s all worth it. This time, my cause was the Alternating Hemiplegia of Childhood Foundation. It was for […]
“Small, Small – but GREAT Steps” – Helping My Neuro-Diverse Child with Physical Therapy
Physical therapy – it’s that thing you do when you injure yourself, right? You go to rehab, and you do physical therapy for a few weeks to help rehab your body. It helps your body relearn how to do things and gain strength in certain areas. Never once did I imagine my little baby would […]