Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t…
The first time I heard the word “trach”, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my…
There is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you won’t even mind it, it’ll be systematic, and other days…
The big events, the unexpected and shocking events, are the ones where we need help the most. Yet typically, you’re in a hospital – you couldn’t pack, process, or prepare…
A Messy House When you step into my house, you’ll notice a lot of unusual things. Exercise equipment is scattered all over the floor, the dining room table is piled…

Quad

Baby dolls – They’re such a joy They made me into the mother I am.. I cradled his head  I rocked him to sleep His head didn’t move,  But I helped him turn, So he could feel real I fed him a bottle, It never dried up I gave him a new diaper, And threw […]

1 min read

Breaking the Cycle

There is no greater feeling than realizing a perspective of life that could help you through the bad days. I’ve had bad days – I’m sure you all have – and finding a remedy for that, not meds, is HUGE. Let me tell you about it. My husband and I recently watched a show – […]

3 mins read

Silent Support

A word can hurt  A question can sound so hard A simple “how are you?”  And your nerves begin to shake  I don’t know how I am, I don’t even know where to begin I can’t focus on anything, I don’t even recognize myself Grief has overwhelmed me  It’s taken over everything I once was […]

1 min read