Dr. Mom
Nursing for My Child: A Beautiful Gift in a Special Needs World
Bearing the Load Together When Paige was first diagnosed – a little 3 month old baby – the terms “24 hour nursing care” were thrown at me, and I felt as though they were weapons. I was scared of not knowing how to take care of trach dependent child, yes, but the thought of having […]
The Beauty of Community: Why I Love Volunteering for a Cause
Last week, I traveled – I rarely travel, as Paige is disabled and leaving her can leave quite a hole in her routine. It takes work, it takes planning. But, if I’m traveling for the right cause, it’s all worth it. This time, my cause was the Alternating Hemiplegia of Childhood Foundation. It was for […]
“Small, Small – but GREAT Steps” – Helping My Neuro-Diverse Child with Physical Therapy
Physical therapy – it’s that thing you do when you injure yourself, right? You go to rehab, and you do physical therapy for a few weeks to help rehab your body. It helps your body relearn how to do things and gain strength in certain areas. Never once did I imagine my little baby would […]
“NonWordy” (nonverbal) People: How Can we Fit in their Box?
Before Paige, the term nonverbal to me sounded almost like an excuse (prepare yourself to see how immature, judgmental, and ignorant I was before I entered the world of special needs) It sounded like an excuse for an ill behaved child – parents who didn’t do enough, and allowed their child to sit and scream. […]
Faith versus The Terrifying Unknown of Alternating Hemiplegia of Childhood
Will Paige stop breathing today Will she hit her record since her last severe event? Will she live to be in her 30’s? Will she develop uncontrollable seizures? Will she have a heart attack next time? Will I get to hold my baby girl until I am old and grey? The terrifying unknown. The unknown […]