Dr. Mom
Post Traumatic Stress Disorder, but expressed in a poem
Terror, Fear Adrenaline, Panic What word can describe The incomparable grit The flash of fear, The heart beat rush One minute happy, The next is a demon I can’t breathe, I can’t even gasp All at once, I feel it The feeling I never wanted to return I try and sleep, But the faces come […]
Being an Advocate in the Medical World: Learning How to Listen, Ask Questions, THEN Make Decisions
What is the parents’ role in the medical field? What is the parents’ role when they are in the ICU, their child is on death’s door, and the medical profession has now “taken charge” in a sense? Have you now lost control over your child? Do you even have a role? Advocating takes Dedication, Patience, […]
Advocating for your Child in the Medical World: Part 1
This post is the beginning of a series that God willing I will be writing in the next couple of weeks. To be honest with you, I am completely unqualified to write this as I struggle with these things too – but in practicing respect and advocacy, I feel that maybe because I know and […]
Nursing for My Child: A Beautiful Gift in a Special Needs World
Bearing the Load Together When Paige was first diagnosed – a little 3 month old baby – the terms “24 hour nursing care” were thrown at me, and I felt as though they were weapons. I was scared of not knowing how to take care of trach dependent child, yes, but the thought of having […]
The Beauty of Community: Why I Love Volunteering for a Cause
Last week, I traveled – I rarely travel, as Paige is disabled and leaving her can leave quite a hole in her routine. It takes work, it takes planning. But, if I’m traveling for the right cause, it’s all worth it. This time, my cause was the Alternating Hemiplegia of Childhood Foundation. It was for […]