Blogs & Poems

As my dad always says “I have words…”

From my spiritual reflections to the day to day tasks – words come flooding out!

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If Your Child Needs a Trach: Part 2

Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t imagine stepping aside for a minute – I couldn’t imagine the time and energy it would take to constantly take care of secretions, bacteria, etc.…
Read more: If Your Child Needs a Trach: Part 2
If My Baby Needs a Trach: Part 1

The first time I heard the word “trach”, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my daughter with a ventilator hooked to her 24/7, a tube down her throat permanently, and not even being able to hear her voice was so…
Read more: If My Baby Needs a Trach: Part 1
A G-Tube Formula Recipe that Warms Your Heart: Pumpkin Pie

There is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you won’t even mind it, it’ll be systematic, and other days it hits you like a brick and it’s all you can think about. Those are the days I need recipes like this – Paigey’s Pumpkin…
Read more: A G-Tube Formula Recipe that Warms Your Heart: Pumpkin Pie