Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t…
The first time I heard the word “trach”, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my…
There is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you won’t even mind it, it’ll be systematic, and other days…
The big events, the unexpected and shocking events, are the ones where we need help the most. Yet typically, you’re in a hospital – you couldn’t pack, process, or prepare…
A Messy House When you step into my house, you’ll notice a lot of unusual things. Exercise equipment is scattered all over the floor, the dining room table is piled…

First Steps

A challenging aspect in having a developmentally delayed child is seeing other children thrive, reaching milestones at the standard rate or even faster. For me, I get so used to Paige and her abilities that it’s like I’m in a little bubble – a bubble that pops as soon as I see the other children […]

5 mins read

Just Be

Thoughts come swarming, I should be doing this, I could be doing that But in this moment, I just want to “be” My life has been adrenaline, My time hasn’t been mine… One hour, two, it’s all been on the clock  No me time, no break… No time to just “be” Now here I am,  […]

1 min read