Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t…
The first time I heard the word “trach”, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my…
There is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you won’t even mind it, it’ll be systematic, and other days…
The big events, the unexpected and shocking events, are the ones where we need help the most. Yet typically, you’re in a hospital – you couldn’t pack, process, or prepare…
A Messy House When you step into my house, you’ll notice a lot of unusual things. Exercise equipment is scattered all over the floor, the dining room table is piled…

Reconstruct

There are buzz wordsWords I’m not used toOr words I’m simply not fond ofI hearI reactI judgeThen I condemn Before even a word is on my tongue, Or a believing thought on my heartOr a conversation to be had Deconstruction It’s such a difficult thingWe hear itWe judgeAnd we simply condemn When in reality, If […]

1 min read

Console

I tell my story – To all those who see my girl  Or sometimes, they just see me The look in my eyes, The patience of my heart They know something is different, Something has changed from yesterday to today  I tell them my girl stops breathing, She has a hole somewhere strange – An […]

1 min read

What Will I Say?

When we meet new people (which we’re doing a lot of in a new state!), people learn about Paige and they often pose the statement to me “I just don’t know what to say – I’m so afraid to say the wrong thing!” I have been trying to formulate my words in a way that […]

5 mins read