Learning the Lessons of the Pit – even when you are no longer there
In my planner this week, on the very top, I wrote, “Remember being in the hospital.” To me, I know exactly what this means. To my audience, however, and those who may pick up my planner and read it I( mean, why not? It’s always in plain sight at my house!), I would like to […]
Medical PTSD: An Example of What It Looks like in Real Life
Three or four years ago, I would’ve walked the halls of a hospital ICU to visit someone. I was disconnected, I looked at the doctors as strangers, and I didn’t know what any of the monitor numbers meant. The smells didn’t bring back any memories – the alarms were simply annoying. I’d go along with […]
Looking, Reaching, Touching & Smiling – The Unseen Skills in Toddlers
Before Paige, I never imagined that patients with syndromes were different when children. Or should I say, I never imagined a baby with disability. My imagination never got past what I saw. With neuro-typical people, we imagine them as children – they fit the normal standard. They met all of the normal standards, and that […]
“Dear DME” – A Poem for Durable Medical Equipment Companies
Dear DME,I never knew you before,I never could pronounce your nameEquipment is for farms, I thoughtDurable is for depots Yet here I am,Washing you every dayI press your buttons every morning,I stop your alarms every nightI give you nicknames now,I hear your noises everywhere -I even dream you talkFrom little to small,You sure do cover […]
Holidays – The “Special” Kind
The Holidays as a Mom- Different than What I Expected As I’ve crossed passed childhood and into adulthood in the past 10 years, it has become clear to me that holidays seem to carry grief and hardship more than joy and peace. This obviously is a general statement, and it is limited to my own […]