Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t…
The first time I heard the word “trach”, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my…
There is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you won’t even mind it, it’ll be systematic, and other days…
The big events, the unexpected and shocking events, are the ones where we need help the most. Yet typically, you’re in a hospital – you couldn’t pack, process, or prepare…
A Messy House When you step into my house, you’ll notice a lot of unusual things. Exercise equipment is scattered all over the floor, the dining room table is piled…

Seeing the Beauty of Gods Design in a “Slow” World

Paige is “delayed” or “slow”. Typically, that term is negative. It’s supposed to be! It takes her longer to do things, and sometimes her cognitive ability isn’t “up to her standard”. She fits the normalcy of a special needs child, a delayed child. However, I want to give another perspective – a positive one. An unexpected […]

5 mins read

Alternating Hemiplegia of Childhood – A Genetic Disorder – What is it and how can you understand it better?

February 18th, 2023, John and I decided to give our girl a chance. She had received a difficult diagnosis a week earlier – a diagnosis we were at the very first step of learning. She had symptoms other children didn’t have, and the symptoms other children had were ones that would change my girl’s life […]

8 mins read