Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t…
The first time I heard the word “trach”, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my…
There is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you won’t even mind it, it’ll be systematic, and other days…
The big events, the unexpected and shocking events, are the ones where we need help the most. Yet typically, you’re in a hospital – you couldn’t pack, process, or prepare…
A Messy House When you step into my house, you’ll notice a lot of unusual things. Exercise equipment is scattered all over the floor, the dining room table is piled…

Recovered

“Is Paige better?” has become a question that gets harder and harder for me to answer – we spent 3 months in a hospital, our daughter was on deaths door – and there we received her diagnosis. Yet, when you’re on the outside of a situation like this, when you hear of someone leaving the […]

4 mins read

Busy

I have a free hour  An hour to do as I please  I usually run, I hustle about  Always looking at the time, Always setting reminders my planner is endless To dos, meetings, appointments – Don’t forget to call her, Check on him, remember  Feed yourself, feed your family Remember to not eat too much […]

1 min read

“Dr. Mom”

How to explain, The instinct that washes over me. The doctors, they come. The nurses – they sometimes care. But I’m the one, Who’s Dr Mom. I know more, I see more. I see when she holds her breath – I see when her eyes become tired. The seizures? They’re sub-clinical. But sometimes, I see […]

1 min read