Comparing the Cross
Theres a statement people say “You choose how your day is going to go”, you choose the attitude you’re going to have. I have felt that fact very significantly especially going through trials. Although emotions can be so overwhelming that you do feel like you’re suffocating – you do feel like you don’t have control. […]
The Emotional Rollercoaster of a G-Tube Fed Baby: Part 2
When beginning my journey to create meals for my daughter, I was overwhelmed with all the options. I was also overwhelmed with accepting the fact that my girl won’t taste her food – in a lot of ways, that’s amazing. But there’s also no reason to give her the joy of ice cream. I don’t […]
The Emotional Rollercoaster of a G-Tube Fed Baby: Part 1
My daughter has been fed through a tube since she was 9 weeks old. It started out as an NG tube (that’s a little tube that goes through her nose, down into her stomach), and then she transitioned to a G-tube on March 1, 2023. A g-tube is a tube that is held in place […]
Enjoy the Quiet
I wrote this a few months ago, and while finding posts to publish I came across it – I am busy right now, yet my words from a few months ago helped me find perspective for today. I hope it helps you too! “The last few days, my life has been quiet. We got a […]
Rescue Plan
In epilepsy patients, or complex care patients, it is typical to have a “rescue plan”. This rescue plan is made available to the entire team, meds are put in place, and that rescue plan is initiated when an emergency occurs. A rescue plan can save someone’s life – many times, drastic measures are taken – […]