Once your child receives the tracheostomy, the information seems never-ending. I personally felt as though simply caring for the trach would take up 24 hours of my day. I couldn’t…
The first time I heard the word “trach”, and had it explained to me, I had extreme nausea and felt I would faint. The emotional response was huge. Imagining my…
There is indeed a whirlwind of emotions when it comes to feeding your baby through a tube. Some days you won’t even mind it, it’ll be systematic, and other days…
The big events, the unexpected and shocking events, are the ones where we need help the most. Yet typically, you’re in a hospital – you couldn’t pack, process, or prepare…
A Messy House When you step into my house, you’ll notice a lot of unusual things. Exercise equipment is scattered all over the floor, the dining room table is piled…

Her Smile

There are days and moments when I feel I want time to stop  I want it all to change, I want the sun to stand still  The feelings are too deep. My fear is too great.  And then, just one moment comes… The moment when I see her smile  Joy springs from my heart,  My […]

1 min read

The Devil is in the Details

This phrase is commonly used to talk about the danger of missing details – how quickly a detail can mess everything up! The devil is also in other details – the ones we may miss frequently, or not give him “credit” for. Very quickly, they will mess everything up. Very often a thought will cross […]

4 mins read

Shades

Gods mercies are new every morning…. I hear the statement sing softly in my head Yet life keeps throwing distractions at me – I forget to see His blessings through the clouds  The sun is shining bright, Yet my own shades keep my life dark My heart aches, My temptations enlarge  Anxiety seems to get […]

1 min read

Move

A time to start fresh A time to reset  They say it’s exciting – They say I won’t be alone  Yet here I sit – I’m terrified  I can’t express myself  I can’t even lift a pen  My identity is shifting  My eyes are softened with tears  Years I’ve been here  Yet not a day […]

1 min read