Unfelt Feelings: What It’s Like Raising a Medically Complex Child

This past week there was a morning I couldn’t keep myself from crying. I was emptying the dishwasher. Every time I looked up at my girl, I felt it—sorrow, worry, fear—all at once. The tears fought, like they always do. I tried to keep moving. I tried to stay busy. But eventually I sat down […]

6 mins read

Home Together with a G-Tube Baby: Learning the Infinity Pump

Bringing a medically complex child home can feel like a second hospital discharge with a newborn all over again. You’re learning things that you never thought you’d have to learn, you’re sometimes confused, and very often overwhelmed. In this blog I will try and alk you through the basics of gtube care at home using […]

7 mins read

From Hospital to Home: Practical Tips for G-tube Baby Care at Home

Bringing a medically complex child home is a mix of relief and fear — and when your discharge plan includes a feeding device, that tension spikes. This guide on G-tube baby care at home is written for the parent who is tired, overwhelmed, and ready for clear, step-by-step help. I’ll share what a G‑tube really […]

7 mins read

How to Break the Comparison Cycle as a Medical Parent

Introduction: We All Compare Grief Comparing grief is something we all do, whether we mean to or not. We see someone across the hall and think, “Wow, I could never do what they do,” or “They’ll never understand.” But comparison creates barriers—between friends, family, and even strangers who could become something meaningful in our lives. […]

4 mins read