Dr. Mom
The Emotional Rollercoaster of a G-Tube Fed Baby: Part 1
My daughter has been fed through a tube since she was 9 weeks old. It started out as an NG tube (that’s a little tube that goes through her nose, down into her stomach), and then she transitioned to a G-tube on March 1, 2023. A g-tube is a tube that is held in place […]
Rescue Plan
In epilepsy patients, or complex care patients, it is typical to have a “rescue plan”. This rescue plan is made available to the entire team, meds are put in place, and that rescue plan is initiated when an emergency occurs. A rescue plan can save someone’s life – many times, drastic measures are taken – […]
My Baby is Fed Through a Tube
I’ve gotten quite used to the look when I say “My baby ate this or that..” and they say “Oh I thought they couldn’t eat solid foods?” and it ends with my explaining that she’s fed through a tube, and they try to keep the “That’s weird” look off their face… I think any of […]
Silent Support
A word can hurt A question can sound so hard A simple “how are you?” And your nerves begin to shake I don’t know how I am, I don’t even know where to begin I can’t focus on anything, I don’t even recognize myself Grief has overwhelmed me It’s taken over everything I once was […]
Recovered
“Is Paige better?” has become a question that gets harder and harder for me to answer – we spent 3 months in a hospital, our daughter was on deaths door – and there we received her diagnosis. Yet, when you’re on the outside of a situation like this, when you hear of someone leaving the […]