medically complex child
Coming Home to the Medically Complex Bubble
I recently came home from a trip with a feeling I haven’t fully sorted out yet. While I was gone, I saw two little kids who made me realize how much my perspective has changed. One little boy looked about five to me. He was standing up straight, walking, talking, and he was tall enough […]
7 mins read
My Child Is in Hospice: A Parent’s Perspective on Pediatric Hospice Care
Five years ago, if you had mentioned hospice, I would have thought of an elderly person who no longer wanted to “fight” a disease or simply someone reaching the end of life because of old age. I imagined a long process where they were cared for in comfort until they passed away. Three years ago, […]
9 mins read